MediFind found 256 doctor with experience in Koolen De Vries Syndrome near Ann Arbor, MI. Of these, 208 are Experienced and 48 are Advanced.
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Andrzej Dlugosz is a Dermatologist in Ann Arbor, Michigan. Dr. Dlugosz is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Cicatricial Pemphigoid, Pemphigus, Bullous Pemphigoid, and Pemphigus Vulgaris. Dr. Dlugosz is currently accepting new patients.
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Fauziya Hassan is a Pediatric Pulmonologist and a Pediatrics provider in Ann Arbor, Michigan. Dr. Hassan is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Central Sleep Apnea, Obstructive Sleep Apnea, Congenital Central Hypoventilation Syndrome, Duchenne Muscular Dystrophy, and Adenoidectomy. Dr. Hassan is currently accepting new patients.
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Mark Hannibal is a Pediatrics specialist and a Medical Genetics provider in Ann Arbor, Michigan. Dr. Hannibal is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Aase Syndrome, Filippi Syndrome, CHARGE Syndrome, and Smith-Kingsmore Syndrome.
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Amanda Pritchard is a Medical Genetics specialist and a Pediatrics provider in Ann Arbor, Michigan. Dr. Pritchard is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Microcephaly Deafness Syndrome, Propionic Acidemia, Delayed Growth, and Aase Syndrome.
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Mark Russell is a Pediatric Cardiologist and a Pediatrics provider in Ann Arbor, Michigan. Dr. Russell is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Hypertrophic Cardiomyopathy (HCM), Cardiomyopathy, Congenital Heart Disease (CHD), Hypoplastic Left Heart Syndrome (HLHS), and Patent Foramen Ovale Repair. Dr. Russell is currently accepting new patients.
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Erin Neil-Knierbein is a Neurologist and a Pediatrics provider in Ann Arbor, Michigan. Dr. Neil-Knierbein is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Pompe Disease, Danon Disease, Dysferlinopathy, and Duchenne Muscular Dystrophy. Dr. Neil-Knierbein is currently accepting new patients.
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Thor Thorsson is a Pediatric Cardiologist and a Cardiologist in Ann Arbor, Michigan. Dr. Thorsson is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Tetralogy of Fallot, Hypoplastic Left Heart Syndrome (HLHS), Mitral Atresia, and Isthmian Coarctation.
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Christina Sloan is a Medical Genetics specialist and a Pediatrics provider in Ann Arbor, Michigan. Dr. Sloan is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Chromosome 8p Deletion, Chromosome 6q Duplication, Delayed Growth, and Fragile XE Syndrome.
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Thomas Michniacki is a Pediatric Hematologist Oncology provider in Ann Arbor, Michigan. Dr. Michniacki is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Aplastic Anemia, Febrile Neutropenia, Hereditary Spherocytosis, Hemophagocytic Lymphohistiocytosis, and Bone Marrow Transplant.
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Elizabeth Ames is a Medical Genetics specialist and a Pediatrics provider in Ann Arbor, Michigan. Dr. Ames is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Delayed Growth, Cardiomyopathic Lentiginosis, Noonan Syndrome, and Cardiofaciocutaneous Syndrome. Dr. Ames is currently accepting new patients.
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Nicole Pariseau is a Pediatric Neurologist and a Neurologist in Ann Arbor, Michigan. Dr. Pariseau is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Seizures, Generalized Tonic-Clonic Seizure, Conversion Disorder, and Memory Loss. Dr. Pariseau is currently accepting new patients.
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Abigail Fahim is an Ophthalmologist in Ann Arbor, Michigan. Dr. Fahim is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are X-Linked Retinitis Pigmentosa (XLRP), Retinitis Pigmentosa, Retinopathy Pigmentary Mental Retardation, and Late-Onset Retinal Degeneration. Dr. Fahim is currently accepting new patients.
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Pamela Williams is an Ophthalmologist in Ann Arbor, Michigan. Dr. Williams is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Strabismus, Esotropia, Amblyopia, and Oculocutaneous Albinism.
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Marion Hofmann-Bowman is a Cardiologist in Ann Arbor, Michigan. Dr. Hofmann-Bowman is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Marfan Syndrome, Aortic Dissection, Familial Ventricular Tachycardia, Cardiac Ablation, and Pacemaker Implantation. Dr. Hofmann-Bowman is currently accepting new patients.
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David Kershaw is a Pediatric Nephrologist and a Pediatrics provider in Ann Arbor, Michigan. Dr. Kershaw is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Posterior Urethral Valves, Alport Syndrome, Autosomal Recessive Polycystic Kidney Disease, Potter Syndrome, and Kidney Transplant. Dr. Kershaw is currently accepting new patients.
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Rita Ayyangar is a Physiatrist and a Pediatrics provider in Ann Arbor, Michigan. Dr. Ayyangar is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Cerebral Palsy, Spasticity, Spastic Diplegia Infantile Type, and Focal Dystonia. Dr. Ayyangar is currently accepting new patients.
Amy Filbrun is a Pediatric Pulmonologist and a Pediatrics provider in Ann Arbor, Michigan. Dr. Filbrun is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Congenital Unilateral Pulmonary Hypoplasia, Cystic Fibrosis, Secondary Immunodeficiency (SID), and Newborn Jaundice. Dr. Filbrun is currently accepting new patients.
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Joshua Meisner is a Pediatric Cardiologist and a Pediatrics provider in Ann Arbor, Michigan. Dr. Meisner is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are CHARGE Syndrome, Cardiofaciocutaneous Syndrome, Noonan Syndrome, and Cardiomyopathic Lentiginosis. Dr. Meisner is currently accepting new patients.
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Shane Quinonez is a Medical Genetics specialist and a Pediatrics provider in Ann Arbor, Michigan. Dr. Quinonez is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Pompe Disease, Dihydrolipoamide Dehydrogenase Deficiency, MELAS Syndrome, and Propionic Acidemia.
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David Bloom is a Radiologist and a Pediatric Radiologist in Ann Arbor, Michigan. Dr. Bloom is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Atresia of Small Intestine, Chondrodystrophy, Acropectoral Syndrome, Endoscopy, and Osteotomy.
Last Updated: 10/30/2025

